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Genetic Alliance UK
Genetic Alliance UK is a national level umbrella charity for 180 patient organisations, funded by grants and memberships, supporting those affected by genetic disorders.〔(【引用サイトリンク】publisher=Genetic Alliance UK )〕 Its aim is to improve the lives of people affected by genetic conditions by ensuring that high quality services and information are available.
==Activities==
The group's work is primarily policy campaigns. It has campaigned for improved regulation and governance of clinical research, including animal research, improved access to new technology such as preimplantation genetic diagnosis, and has responded to Government consultations on the restructuring of the National Health Service between 2010 and 2012 to ensure that the needs of those with genetic conditions are properly addressed.
The group also commissions projects covering issues of common interest to its members; these have included insurance, prenatal diagnosis, patient access and patient information. It also works on gathering evidence of need through research projects and on directly improving information and services to patients.
The work has expanded outside the United Kingdom into the European Union. The group works through EGAN (European Genetic Alliance Network) to promote the interests of those with genetic conditions at European Commission and European Parliament.
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